Things are going
pretty good.
We are feeling pretty good about
how things are going with pops
at the new place.
He seems happy.
In fact, possibly more
happy than he seemed
before he went there.
He continues to laugh
and to sing and to
carry on when we go
to visit him. I feel like
we have a long road
ahead of us but I feel
quite optimisitic
about things. He is my
dad and I will be there
for him.
Others, not so much.
Thank God for my
daughter
who helps out so much.
And who he loves the most!
I'm so happy about that.
I'd rather have him know
my children than know me.
They miss their Papa.
I miss my daddy.

Today is the best
he will ever be again.
Someone said that to me.
I guess that is true.
This disease is progressive.
It only gets worse.
It doesn't get better.
We certainly can have
days that are better than
the last.
But today is the best he will
ever be again........

Monday was the day
She dropped him off.
I haven't heard
anything since then.
hmmmm
What to do..
I will see if she called
to check on him.
To see how his night
went. To see how his
day is going.
Otherwise, I will call
tomorrow. I will visit
on Thursday for music.
I feel sad
I feel sick to my stomach
My heart hurts
aches
devasted
I missy my daddy

I'd like to go away from here please
I wish I could just not think
about it for awhile
I don't think that is
possible for me
That is who I am
I care
I don't get the other
people
and why they don't care
I cannot understand
comprehend
or
fathom
it
Each to their own
At the end of the day
I will know I was there
I will know I've done all
I can

I miss my daddy

The time is now
We have found a place that
we all agree on and like
The fact that it is nice
doesn't help the fact
that I don't want to do this
We really don't have
any other option at this point
This is just the progression
that this disease is taking
I am NOT ready for it
I do NOT want to do it
I feel suddenly as though
I need to cram tons of things
into the last few days of
his life in the outside world
I know that I will be able to
take him out but I also know
that it will be different
Last night we have the 1st
evaluation by the RN and the
Occupational Therapist
I was supposed to be paying attention
to the RN who was talking
with my mom and I but
all I could do was listen
to my dad talk to the OT
He was actually talking
and listening and attempting
to answer questions
I listeted intently as his
brain searched for answers,
sometimes they came freely,
other times he never found them
Either way, he was happy and
he was talking and I was
enjoying hearing him speak
He doesn't know how many kids he has.....3 or 4
boys or girls? mostly girls, i guess
What city are you in? East Moline, IL
Holds up a picture of my mom, "is this your wife" No.
No recognition whatsoever
Points to a pen, what is this? no answer
Points to her ring, what is this? no answer
It was very sad
I miss my daddy